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Janet Jones

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My name is Janet Jones. I am Euvon Jones' wife. We met when he was in a band, and I was in an acapella group. I went to Morgan State University, majoring in English literature.

One day, Euvon was preparing to go to work and I noticed that he was limping a little. It was a very slight, almost unnoticeable limp. It alarmed me a little, but because he was not alarmed, nor did he take notice of it, I played it off.

And months went by and that limp got stronger and stronger and more noticeable. So, I suggested to him, because I had an orthopedic surgeon because I had arthritis in my knees, I suggested to him that he see my orthopedic surgeon. And it took a while to convince him to do that, but when he finally did, the orthopedic surgeon originally diagnosed him with hip arthritis and he gave him some ibuprofen, which he took.

And once that prescription wore off, before he could renew the prescription, I asked him to just hold off and see how he felt and see if it had helped his hip. Well, in a couple of weeks, the pain was excruciating. He could just not move.

He was in so much pain. I felt sorry for him. So I said, "You have got to go back to the doctor and get that prescription." We went to the doctor and they sent him for an MRI and that day he was going to get the MRI on the way home from work.

I, on the other hand, was preparing to go to my college gala because it was homecoming weekend. And I was getting all dolled up to go to this gala where he was going to the MRI and because he was on his own a lot, he was very independent. He called me from the MRI, and he asked me to look up multiple myeloma.

Multiple myeloma, my brain said cancer. And I could not get myself together. And I said, "Do you know what multiple myeloma is? " He said, "Well, I think it may be some kind of illness, but I have to see this oncologist." I'm like, "Oncologist? Okay."

And so when he hung up, I could not get myself together. I knew then that the gala was off. I needed to look up multiple myeloma, and in the process, I was just in tears. I could not believe that this strong husband had cancer. And so we went to this small clinic, the oncologist ran some tests and she confirmed, "Good news: It's not multiple myeloma, bad news: It is stage 4 prostate cancer."

I lost my breath. I felt like we had gotten shot because now we're Christians. We love the Lord. How in the world did you let us miss stages 1, 2, and 3? We clocked in at stage 4.

And she wanted to do a biopsy and it was in a small office. So, we needed to caucus. We needed to gather our thoughts. We needed to come to terms with, this is cancer. This is stage 4. She wants to do a biopsy in this office.

No, this hospital that you work with is your client. It needs to become your caregiver. So, we let her know we're going to get another opinion. So, we went to Dr. Dawson's office and she did the biopsy, and confirmed that it was stage 4 that had metastasized to his lymph nodes and his bones.

I choked. How long does he have? She would not give us a timetable. And because she didn't, what she did inform us was he's not going to live long, so we're not going to do chemo, radiation, or surgery. It will destroy his quality of life.

She did a digital, a rectal. I left the room while she did the rectal. But 30 seconds later, I came back in the office, and she let me know and let us know that his prostate was so bad she wasn't even going to remove it. No cutting. She said, "Any cut will destroy him." And so that's when she recommended the hormone therapy.

So I researched everything I could to find out how to help him while he was still living. And I came alongside with Dr. Dawson. Everything I wanted to do, I checked with her and she gave me the okay. So, I changed our diet. I also got rid of all of our cleaning products, hygiene products, replaced it with my own products. And so today, the only thing we use is olive oil, coconut oil, shea butter, cocoa butter - that's our go to regimen.

So we got used to that kind of living and I chronicled it because in the back of my mind, I still believed he didn't have a long life, and I believe we were going to have some very high medical bills. So I thought, I'll write this book.

Then we decided to take it to a church and then we decided let's just go to some churches and talk about prostate cancer, because we realized in the process that men just don't deal with prostate cancer.

Forget about the medical bills because in the process, our medical bills weren't coming in because we had such great insurance that we didn't know we had because nobody was getting a checkup. So, we didn't realize that our insurance was taking care of a lot of our medical bills. So, we were free to just go out and give away the books and those who could afford it, purchase a book. If you couldn't, you had someone who had prostate cancer.

And there were so many women whose husbands or fathers had prostate cancer and wouldn't talk about it. They would sneak around and say, "Can you put the book in a bag? And I'll just read it on my own."

But we realized too that because men don't talk about it, they don't want to get checkups. And so I've been telling these men, a rectal checkup is 60 seconds. Go ahead and get your 60 seconds because it's worth your life.

You can build bridges, you can build buildings, but you don't want to get a rectal? For me, it's almost laughable, but it's sad because we need our men. We need our men to be strong, to be healthy, to do their job because we have our jobs to do.

And I'm proud to say that I don't mind being a caregiver. I was put here to take care of my children, my community, my husband. I had to take care of my dad when he was sick. So, my job was as a caregiver, and it kept me hopeful. It kept me focused, and it kept me determined to come to a positive conclusion.

I have gotten involved with some support groups and I encourage any caregiver to get involved in some support groups. Take time for yourself. If you don't take care of yourself, you're not going to be able to take care of your spouse, your loved one.

So the main goal, take care of yourself first because you're going to need the strength. Everybody's different. Everybody's story's different. Some men are in more of a desperate state than my husband was. So, you really have to strengthen yourself, be prepared, take time for yourself, do what you can afford to do.

Even if it's just reading a book, writing, go back to some of your old hobbies, take up something that's going to satisfy you, find out what your loved one wants to do or what they love to do, and combine the two. Even if it's a short walk, go to a movie, watch comedies. Comedies are the ticket. My husband and I, we're like, we watch them. We turn on comedies.

The purpose of the book, which I decided to turn into a memoir called The Trial of Stage IV Prostate Cancer, the purpose of the book was to inform families of what prostate cancer looks like, because there's so many books out there about breast cancer and different illnesses and different mental issues, physical issues, and there was very little about prostate cancer. So, I wanted to not only to help us financially, but I also wanted to help families emotionally discover what that looks like, what their options can be. We don't always need to rush to being cut. There are other things that we can do.

The most important thing also is to find a good hospital, find a good doctor. And if you're not satisfied, run for the hills. Find out if your doctor knows about immunotherapy, clinical trials. And that was one of the main purposes of the trial, because the trial was not only an emotional trial, we were involved in a clinical trial.

And they were involved in a trial of just pursuing hope in the midst of the storm. And so it just made me pour out our life as raw as I could to help people understand that it's okay to talk about prostate cancer. It's okay to understand that you can survive prostate cancer. It's okay that it doesn't take your manhood. It's okay to understand that you're still you.

This book showed our tears, it showed our joy, it showed some of our wartime fairs against each other, but it also showed us coming together because we knew that if we can fight this hard at each other, what a team we could make fighting together for this very formidable foe.

 

This video was produced with the generous support of Dendreon Pharmaceuticals

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